Rarely Heard: Hunter Syndrome
- Health & Fitness · Medicine
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About
Rarely Heard is about Hunter syndrome, a rare and life-changing genetic condition and is intended for families, patients, and anyone interested in learning about the disease.This podcast is initiated and funded by Takeda Pharmaceuticals and is intended for an international audience outside the USA and UK. The information shared is for educational purposes and does not constitute clinical recommendations for diagnosing or managing disease. The speakers received honoraria from Takeda for their participation. The views expressed reflect the experience and opinion of the speaker. VV-MEDMAT-45197 Hosted on Acast. See acast.com/privacy for more information.
Also on
Recent episodes
- Episode 1: The early signs of Hunter syndrome
- Episode 2: Managing the symptoms of Hunter syndrome
- Episode 3: Improving emotional well-being for families
- Episode 4: A doctor’s perspective: The spectrum of patients with Hunter syndrome
- Episode 5: A doctor’s perspective: Multidisciplinary care for Hunter syndrome
- Episode 6: Understanding how patient organizations can support families
- Episode 7: A parent’s perspective: Living with Hunter syndrome
- Episode 8: A parent’s perspective: The impact of neuronopathic symptoms
- Episode 9: Hunter syndrome: A practical summary
- Episode 0: Trailer