RARING
- Business · Non-Profit
- Health & Fitness · Mental Health
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About
Welcome to RARING, the voice of the rare disease community and a no-BS forum for patients and their families, rare disease patient organizations, and medical professionals. If you live with a rare disease or love someone who does, RARING is the podcast for you, by you, and with you every day. Tune in to hear leading experts discussing next-generation diagnostics and treatments. Learn from passionate nonprofit leaders talking about their highs and lows fighting for their communities. And laugh and cry as real patients and caregivers like you share authentic and inspirational stories about their challenges and struggles to busy l...
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Recent episodes
- Season Finale: The FDA's Dr. Kathleen Donohue and RDCA- DAP
- Living With Trichotillomania: Pageant Queen Sarah Pennington
- Paying It Forward: Young Adult Brain Cancer Survivor Rob Long
- The Incredibly Talented Mr Bobby Foster
- The Patient Experience: Philip Bright
- One Piece Of The Puzzle: Dr. Adrienne Hammill
- From Pain To Purpose: Kari Luther Rosbeck
- Chris Anselmo: The Accidental Muscular Dystrophy Advocate
- Rare Disease Day 2022 with actor Adam Rose
- Rare Disease Day 2022 with actor Adam Rose