Not So Rare Podcast
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About
It is estimated that over 300 million people are affected globally by rare diseases. Although each rare disease only affects a small group of individuals, we believe that by sharing our experiences living with a rare disease, we can help the broader rare disease community with their rare disease journeys. Join us, Taylor and Liz, as we further explore the impact of rare diseases on our lives. Together we are 'Not so Rare!' Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram by following @NotSoRarePodcast as well as on Facebook by searching...
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Recent episodes
- Rare Disease and Family Planning - Part 4
- Life Update from Taylor & Liz
- Advocacy
- THE Not So Rare Mom
- Challenges of the Self-Diagnosed
- Post Appointment Anxiety
- Fundraising
- Meet Lily - Advocating through Community
- Exploring Dual Therapy Treatments
- Rare Disease and Family Planning - Part 2 - Taylor