Patient Empowerment Program: A Rare Disease Podcast

n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)

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About

Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply the efficiency, versatility and specificity of antisense technology to charitably provide experimental antisense oligonucleotide (ASO) medicines to treat patients (less than 30 patients) that are the result of a single genetic defect unique to only...

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Recent episodes

  • Sneak Peek of the 2026 Nano-rare Patient ColloquiumSep 10, 2026 · 47 min
  • Realities of the Nano-rare: Siblings, Unfairness and Hard Truths with Sally JacksonAug 26, 2026 · 1 hr 19 min
  • Silencing ALS with Neil ShneiderAug 5, 2026 · 29 min
  • Miracles of Science: Antisense TechnologyJul 15, 2026 · 35 min
  • The Personal Rare Disease Journey Behind CNBC Cures with Becky QuickJul 1, 2026 · 1 hr 10 min
  • Patient Story: Understanding ALS with Bill O'Sullivan and Neil Shneider, M.D., Ph.D.Jun 17, 2026 · 53 min
  • Miracles of Science #3: RNA World Part 3Jun 3, 2026 · 36 min
  • Miracles of Science #3: RNA World Part 2May 27, 2026 · 28 min
  • Miracles of Science #3: RNA World Part 1May 20, 2026 · 34 min
  • Realizing Hope for LaykenMay 6, 2026 · 1 hr 5 min

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