The Fine, But Not Fine Podcast
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About
Fine, But Not Fine is a podcast for anyone navigating the messy, frustrating, and often invisible challenges of rare diseases, chronic illness, and the healthcare system. Hosted by Kelly Paul, who has lived with Mycosis Fungoides (a rare form of Cutaneous T-Cell Lymphoma) since 2015, this podcast dives into the real-life struggles of managing an incurable condition while still trying to live a full, meaningful life.
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Recent episodes
- FSA Open Enrollment With Cancer: Forecasting My Own Body - Ep. 39
- World Lymphoma Day Belongs to the Rare Ones Too - Ep. 38
- Did I Really Have to Say That? Disclosing a Cancer Diagnosis at Work - Ep. 37
- Why Mycosis Fungoides Takes Years to Diagnose: What I've Learned - Ep. 36
- The Mycosis Fungoides Rule Out - Ep. 35
- Treatment Fatigue: Doing the Hard Thing Forever With No Finish Line - Ep. 34
- High Liver Enzymes on Interferon: Why I Had to Stop Treatment - Ep. 33
- 150 Appointments: What Rare Disease Treatment Actually Costs - Ep. 32
- Two Days in the Halls of Power - Ep. 31
- Inside Rare Disease Week: Taking Advocacy to Capitol Hill (Part 2), Ep. 30