#BeyondHAE Youth Produced Podcast

US Hereditary Angioedema Association

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About

The #BeyondHAE Podcast is a series dedicated to amplifying the voices of young people affected by Hereditary Angioedema and raising awareness about the disease. Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that, an opportunity for young people affected by HAE to share their unique stories with you! Visit www.haea.org for Hereditary Angioedema support, information and resources.

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Recent episodes

  • #BeyondHAE: ReyJeanne's Story Living Beyond Her DisgnosisSep 28, 2026 · 24 min
  • #BeyondHAE Voice of the Next Generation: Noah and KateAug 28, 2026 · 7 min
  • #BeyondHAE: Voices of the Next Generation Nick and DylanJun 25, 2026 · 9 min
  • Voices of the Next Generation: #BeyondHAEMay 6, 2026 · 11 min
  • #BeyondHAE Podcast: Advocating for Rare Disease on Capitol HillMar 10, 2026 · 24 min
  • #BeyondHAE Podcast: Moments That Mattered: HAEA Youth on 2025 and BeyondJan 2, 2026 · 17 min
  • #BeyondHAE: High-Fiving Palm TreesNov 3, 2025 · 13 min
  • #BeyondHAE Podcast: Advocating for Yourself As You Transition into CollegeAug 25, 2025 · 13 min
  • #BeyondHAE Podcast: A Family’s Journey with HAEJun 30, 2025 · 10 min
  • #BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease PolicyMay 1, 2025 · 22 min

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