Wait, How Do You Spell That? A Rare Disease Podcast
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About
Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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Recent episodes
- Redefining Cancer Treatment: Interview with Dr. Charles Link on Sync-T and the Future of Immunotherapy
- Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney Cancer
- Focus on the Rising with Lisa Batista
- Navigating the Patient's Journey featuring Brenda Snow
- The Role of AI in Medicine feat. Joe Lennerz, BostonGene
- Spreading PAH Awareness featuring Steve Smith
- All About Koolen de-Vries Syndrome, feat. Patient Advocate Ashley Point
- PKD and the Gift of Life, feat. Patient Advocate Valen Keefer
- The Power of Resiliency, Feat. Multiple Myeloma Patient Advocate Keisha Hickson
- Epilepsy and Unmet Need, feat. The LGS Foundation and Ovid Therapeutics