Confessions of a Rare Disease Mama
- Education
- Health & Fitness · Medicine
- Kids & Family · Education for Kids, Parenting
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About
Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.
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Recent episodes
- Mini Episode: All Aboard the Grief Train… CHOO CHOO
- The Gap in Mental Health Support After a Diagnosis
- Letting go of the "shoulds" of the holiday season
- Life Lately/Catch up: Road Trips, School Days & Real Talk with My Husband
- Life Lately/Catch up: Road Trips, School Days & Real Talk with My Husband
- BONUS EP: What to do when the world feels like too much
- Life Lately: Solo Parenting, Sick Kids, & School Plans
- Creative Fundraising in the Rare Disease Community – Global Genes Panel Recording
- Life Lately: A Rare Mama Catch-Up
- Navigating Resources and Grants with Advocacy Abby