On Rare
- Education
- Health & Fitness · Medicine
- Science · Life Sciences
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About
Join us each month to listen and learn from the experts – people living with rare conditions. We’ll discuss the challenges and triumphs of life with a rare genetic condition and hear from scientists working to develop new medicines. Honest conversations with the rare community, led by the patient advocacy team at BridgeBio. Subscribe below to catch each episode as it goes live.
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Recent episodes
- On Rare Innovators: The Dream Merchant. Stan Crooke and the founding of n-Lorem
- “You Can Be Your Own Advocate” – Adrienne is Living with ADPKD
- "We're here for a good time, not a long time" – Ashley is Living with EPP
- “He Gives Everything a Go” — Elliott, Living with MOCD Type A
- On Rare: Arielle's Long Diagnostic Journey
- On Rare Innovators: Kat Bryant Knudson and Reimagining Collaboration — “It’s Our Table”
- Another Year of Purpose and Progress: On Rare Looks Back at 2025
- On Rare Innovators: Carmen Alonso y la fundación de ALPE - "El amor que das, lo recibes de vuelta"
- On Rare Innovators: Nasha Fitter is Redefining the Rare Disease Playbook – “Who says we can’t do this?”
- "It’s good to be alive." Greg is living with LMNA cardiomyopathy